Multiple Sclerosis & HIV: An Unlikely Connection

Causes, KB's Journey

This week, I’ve been thinking about my mother a lot. Mainly, I’ve been thinking about how proud she would be to see how far I’ve come with my career, my personal life, and with Red Pump. We started Red Pump a year after she passed away and I can’t help but to wish that she was here today to gush over my photo in Essence or to reassure me when I’m too exhausted from juggling so many hats.

For me, my mother was the prototype for fabulous giving. As a teen, she volunteered with different groups and also taught a Sunday school class at her church. When she moved to Chicago, she continued her season of service and found groups to devote her time and attention. I’ll never forget how she would take us with her on Monday nights when she tutored foster children at the Harold Washington Library. Her commitment to that role landed her a Volunteer of the Year award from Volunteers of America. I still display that award proudly in my home as a reminder of how far doing good can take you.

Living with multiple sclerosis inserted many challenges in her (and our) day-to-day life. I’ve shared before about my experience as a youth caregiver but that is only part of the memories. For every challenge, there were plenty of happy moments. I just wish that her MS wouldn’t have gotten in the way of us creating so many more.

 

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This week is MS Awareness Week, a time where we are asked to take action to help others learn more about MS and what they can do to make a difference. One of the asks of the National Multiple Sclerosis Society is that we spend this time “creating connections stronger than the ones that MS destroys.” For me, the connection that I have to health education and activism is far greater than anything that this disease could EVER destroy.

The fight against multiple sclerosis was the first cause that I’ve ever rallied behind. In high school, I volunteered at the annual MS Walk, did multiple presentations on MS, and racked up service hours after school in their office. I continued that commitment in college and in the years right after my graduation. At this point in my life, I don’t have as much time to physically devote to MS and it would seem that HIV has “stolen the show” so to speak. That’s not the case. I will never forget (or forgive) how multiple sclerosis has impacted my life, or the role that the disease played in my mother’s passing.

Without a life impacted by multiple sclerosis, I don’t know if I would be as passionate about causes or service. I don’t know if I would have the tools or desire to be an advocate. I don’t know if I would have ever started The Red Pump Project. So, as I recognize MS Awareness Week, I will make a donation to my local chapter of the MS Society, but I will also raise my voice louder for anyone who needs a champion. From MS to HIV, it is my sincere prayer that my efforts make an impact.

More importantly, I pray that I continue to make my do-gooder mother turned angel proud.

To learn more about multiple sclerosis, a debilitating neurological condition, check out this helpful section on the National MS Society’s webpage.

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2 Comments

  • Reply
    VEG
    March 6, 2015 at 3:02 pm

    Beautifully written.

    I was diagnosed with this disease 7 years ago. I’ve been lucky – I’m relatively healthy. But that doesn’t mean I don’t relate or feel for those who suffer with this illness.

    • Reply
      KaBrianne
      March 23, 2015 at 7:20 am

      I didn’t know that! That is definitely a blessing re: your MS. I’m of course praying that yours stays the course and doesn’t get worse. I’m encouraged when I connect with others about MS because it doesn’t feel like we’re in individual bubbles dealing with our own experiences.

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